1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.

Chronic pain

Discussion in 'Life Changing or Long Term Physical Illness' started by Walker, Nov 22, 2016.

  1. Jazlyn

    Jazlyn Well-Known Member

    I hope you find the right doctor. There are a lot that don't care and a lot that do. I would keep searching for the right doctor or ask your doctor about sending you a referral to pain management so you can seek treatment for your pain properly. That is just awful you have no answers and no pain relief options. You have every right to feel down. That's not acceptable to just be in pain.
     
  2. Banana

    Banana New Member

    Being a chronic pain sufferer too, I thought I’d throw out some ideas in case they help anyone. I was on tramodol, gabapentin and cyclobenzaprine for about 10 years before they started to build up in my system and almost killed me. I never took more than I was told to either. I’m in much worse shape after taking them than before I started. All my doctors now have just told me that I just need to learn to live with it because supposedly there is nothing they can do. This turned me to find other ways that can help with pain.

    I had been tested for food allergies many many times in my life and it always came up negative. But I’ve come to find out that I have food intolerances that make my pain much much worse. I’ve heard food intolerances can make you start hurting more anywhere up to three days after you eat an offender. That made it hard for me to figure out what makes me worse. If fasting helps anyone, I’d have to wonder if it’s becuase you didn’t eat something that makes you hurt so you end up feeling a bit better. An elimination diet would tell you what you can’t do. Cut out something for a few weeks and see how you feel when you add it back in. I was surprised to find out most of my family had food intolerances. I think they are more common than people think and medical doctors don’t really know much about it usually.

    Also, vitamin b cream can be applied to the areas that hurt for some relief of some conditions. I use the once by Sarati on amazon. It’s a vitamin supplement cream not some random moisturizer. I got this information from a lady who used to be a doctor in another country. I was so surprised it did anything.

    I’ve also had help with magnesium oil spray. Magnesium can be a natural muscle relaxant (doesnt work as strongly as medication ones) that can be used with medication. I can’t sleep without using a bunch before bed. It has been a huge help since I can’t take muscle relaxants anymore.

    Anyways, I hope this can help someone. :)
     
    MarkahMalady, Arun and Walker like this.
  3. MarkahMalady

    MarkahMalady Well-Known Member

    Can't sleep, too much pain. XD Oh God.

    I should probably stop taking so much ibuprofen, I'll detox this weekend.
     
  4. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    Sorry to hear that, @MarkahMalady Have you tried switching between ibu and naproxen? Like take naproxen twice a day and ibuprofen in between. I do that when I'm extra messed up. I sure hope you start feeling a little better to you can get some rest.
     
  5. MarkahMalady

    MarkahMalady Well-Known Member

    I appreciate the tip @walkerbait95, in the past naproxen ain't done shit for me. It might be time to give it another try though. I was on prescription naproxen from age 12-26, so maybe it's become less effective for me. Is that a thing?? Idk.
     
  6. MarkahMalady

    MarkahMalady Well-Known Member

    Okay, I guess I'm buying some naproxen tomorrow because my bones are on fire rn.
    Hopefully at some point I can stop being a spaz and be honest with my dr about this suffering.
     
  7. Roseforhope

    Roseforhope New Member

    Naproxen and aspirin and ibuprofen and acetaminophen are child's play. I'm joking, but they don't touch strong pain. Consider stronger pain meds.

    Everyone's situation is different, but often people don't get their soft tissue problems treated by MDs, PTs, chiropractors, etc. Soft tissue means muscles, tendons, ligaments, and most of the other stuff of your body except your organs and blood system.

    If you have trouble with muscles or joints or just pain in general, I'll bet a whole lot of you need to know about treating "trigger points." They are highly painful teensy "knots" in your muscles and can incapacitate you.

    To start, go to Amazon and get The Trigger Point Therapy Workbook, any edition.

    It's a cheap book, it'll tell you how to treat your own body, and there are no drugs involved! This is like a Bible for me and helps me get through my chronic pain. It's a lifesaver.
     
  8. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    I was assuming that heavier meds weren't an option when saying to switch between the two others, yanno? There's a narcotic crackdown in this country lol
    I'll have to check out that book maybe, @Roseforhope I'd try anything these days to help.
     
  9. jack 1957

    jack 1957 New Member

    wow, so glad i visited this site......i don't feel half as bad as some of these folk in here...i almost feel like going for a run....
     
  10. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    LOL Well, Jack, we're glad to have your humor, friend. Go for that run!
     
    lonelyfool likes this.
  11. Stevies Wanderers

    Stevies Wanderers Well-Known Member

    Hi everyone!

    Just saw this thread. I too have chronic pain. It was a simple accident at work six years ago and I have chronic back pain ever since. About two years ago my right shoulder went out in sympathy! As a result, I have been unable to work for the past five years. I managed to get back on a part-time basis a year after the initial accident but the pain just kept getting worse so I had to go on sick leave again and I haven't been able to return since.

    I have had four sessions of the nerve blocking injections and, apart from the first one which worked for about a fortnight, none of them have helped at all.

    I attended a Pain Management Course in August of last year and, to be perfectly honest, the only thing I got out of it was meeting other people who were going through the same thing! A group of us have kept in touch and it really helps that there's others out there who know exactly what it's like and have experienced the same things, from professionals not believing you to friends and family saying something really stupid, albeit unintentionally, most of the time. For example, one we all got was; "Would you not do some voluntary work?!" Lads! If we could do voluntary work, we'd be at work!!!

    I'm on a cocktail of painkillers as well. I think I'm immune to them at this stage. None of them work. I had bouts of depression before all this happened but since the accident, it has just gotten worse and worse. It's a vicious circle. I'm depressed because I'm in constant pain, the chronic pain fuels the depression and anxiety, and don't even get me started when a flare-up happens! I have to use a stick when walking and it could sometimes take a full five minutes to get in the door of my house.

    Not that I'd wish this on any of you, but, I'm glad I found this thread and who knows, they may come up with a magical cure for all of us some day!
     
    lonelyfool likes this.
  12. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    Im holdin out for that myself. I do hope so - for all of us. Its very difficult.
     
  13. Stevies Wanderers

    Stevies Wanderers Well-Known Member

    Isn't it just?! The amount of times people have said to me, "Oh I saw you playing with the band," or, "I saw you out with your dog. You must be better." Or, my favourite one, "You're looking well, you must be better now!!!" I have to bite my tongue because it's impossible to get it through that just because we're doing something we enjoy or we're not screaming in pain, does not mean we're not in pain, it just means we're dealing with it the best we can and the majority of us wouldn't dream of telling people how bad we really are!!!! Rant over!!o_O
     
    lonelyfool likes this.
  14. SillyOldBear

    SillyOldBear Teddy Bear Fanatic Staff Alumni

    @Stevies Wanderers I so agree Stevies. All you have to do is put on a forced smile and people will think all is well. Or at least believe that they don't have to ask you how its going.
     
  15. Kalicka

    Kalicka SF Supporter

    I haven't really talked much about my medical issues since I've been here. I've mentioned that I have them a few times, but haven't really gone into what that means. Today I went searching in the physical illness forum, because it's a bad day. On the minor side I have COPD and celiac disease. I also have a disease called dermatomyositis. Now you're thinking WTF is that. I'll just paste the jist of it here so you don't have to go looking.
    Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. Symptoms can occur suddenly or they can develop slowly over a period of months. Symptoms of dermatomyositis include muscle pain and joint pain. Symptoms can lead to difficulties performing the activities of daily living, such as dressing, walking, bathing, and eating. Dermatomyositis also causes a skin rash.

    I've outlived my life expectancy by 2.5 yrs, and I'm seriously annoyed by that fact today. I have the version with heart and lung involvement. Some days I walk around and you'd never know something was wrong, other than the occasional wince. Other days I walk with a cane. Days like today, well right now I am laying on the floor with pillows strategically placed around me in hopes that maybe by some miracle I can get a minuscule moment of semi relief. The physical pain is compounding a series of other things occurring today and I'm literally hurting from my brain to my toes. Since I can't be trusted with narcotics, I'm basically shit out of luck at this point. I'd give anything to reduce this pain. I don't have any suggestions for others, sorry, but I'm open to any ideas.
     
  16. SillyOldBear

    SillyOldBear Teddy Bear Fanatic Staff Alumni

    @Kalicka I am glad you shared your medical issues. My eyeballs just about popped out of my head when you described COPD as minor. Geesh! Then I read about your muscle disorder. It truly sounds agonizing. And when its someone unpredictable it must make it harder to do anything. I find that I am of mixed feelings when it comes to opioids. I need to use them on occasion. And they are a blessing. While my use is infrequent (once a week maybe), I think the fear of addiction prevents many from getting the relief they desperately need. Doctors don't want to prescribe them and government doesn't want you to have them. If it was only a small portion of your body that was in pain, I would suggest a cold pack, but when it is so widespread, I just don't have any ideas.
     
    lonelyfool likes this.
  17. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    Geez Kal, I didn't realize this either. I'm sorry to hear this. This thread is filled with us who are pretty miserable with the pain thing just driving us crazy. Some days are so freaking hard!!!
    @Kalicka
     
    lonelyfool likes this.
  18. Kalicka

    Kalicka SF Supporter

    People offline tend to focus on my laundry list of medical bullshit, so I'm hesitant to mention it here. It's hard to hide from people who see you everyday. Today is just plain freaking hard. From the physical pain to the mental pain. It's been one of those days that I'm hanging on by my teeth, as they are the only thing that doesn't currently hurt.
     
    DrownedFishOnFire and lonelyfool like this.
  19. Walker

    Walker Everything Zen Staff Member Safety & Support SF Social Media SF Supporter

    Dude. I just want to hug you right now. No kidding. @Kalicka I get it. I get it more than you realize.
     
  20. Bluetoo

    Bluetoo SF Supporter

    I’ve had fibromyalgia, allergies, and migraines and used to go to a pain management clinic. I was prescribed opiates for 20 years I guess. It helped but I got so tired of dealing with the looks and comments even from my dr that got me started on the pain meds in the first place that I just weaned myself off them last winter. It was brutal with withdrawals but I’m glad I no longer need to go to monthly visits just to get what I needed.
    My pain is not like it was when I first got it, thank god. It’s more like a dull constant ache all over now. I believe I wouldn’t get so down if not for that. I’ve always managed to keep my chin up my whole life but now with marriage problems after 32 years with him, I seem to have just crumbled. It’s hard to even just move these days.
    What’s weird is out of the blue I will have a good day and do a bunch of fun stuff and wonder why I get so low other times. Then when I get low I wonder how I had any fun times. Lol such a roller coaster ride.