Chronic pain...

Discussion in 'Help Me! I Need to Talk to Someone.' started by Ajean, Jun 11, 2012.

Thread Status:
Not open for further replies.
  1. Ajean

    Ajean Well-Known Member

    Theres so little left to say that I haven't already.
    Other than that summer has rolled around again and a couple hours under a tree, in complete shade, with spf 50 on, and my skin got so royally roasted (through my shirt!!!) that it hurts to wear clothes.

    And my skin is so paperthin that I barely grazed it on the wall, tore my fingers open, and bled and bled and bled...

    I'm in so much pain you don't even understand. its ringing in your ears, having nails in your skull, beyond the point of passing out and just consumed by pain. Can't eat, can't sleep, can't walk, can't see, can't think. It hurts too much to cry.
  2. total eclipse

    total eclipse SF Friend Staff Alumni

    Ah hun im sorry you are in so much pain Have you tried calling your doctor hun or going into walk in clinic to get something to ease up the pain some hugs
  3. starryeyed

    starryeyed Well-Known Member

    Chronic pain is caused by an ongoing illness usually. Be thankful that this will pass and you're not seriously ill. I have chronic pain so bad I can't walk far and this is an illness not something like a scrape and sunburn which will pass in a couple of days.
  4. Ajean

    Ajean Well-Known Member

    Hey Starryeyed, I know its been a few days since I posted this but I AM chronically ill, and have Chronic Pain. I've been struggling with it for over 3 years now. I am seriously ill.

    Its not really the scrape on my finger or the burn on my shoulders thats been bugging me, its that on top of being in pain all day, every day, its that little things like this are still happening to me because of the medications I've had to be on.
  5. pickwithaustin

    pickwithaustin Staff Alumni

    What did the doctors diagnose and what treatment for this do they have you on?
  6. Ajean

    Ajean Well-Known Member

    My neurologist says theres no such thing as chronic migraines so they've all been calling it "chronic headaches with intermediate migraines". Which I feel doesn't exactly cover it but...

    As for treatment, we can't determine a cause so we don't know what to do, but we've tried everthing under the sun besides cutting my head open, killing the nerves in my upper neck and head, and heavy duty narcotics (at home).
    I've had blood work, x-rays, mris, occipital nerve blocking, DHE, Spent several nights in the ER, I've been hospitalized for several weeks and pumped full of all kinds of meds that they thought might work. I've been allergic to both of the main drugs for people who get occasional migraines.
    I've been in a teen depression group thing to try to get that "under control" because (according to stupid people at the hospital) my depression was causing the pain. which was exactly the opposite but they wouldn't listen.

    And although I've had several recomendations to be put in the pain management program, I've been denied because, get this, the older people in the program would not want to see me there.

    So we've reached out to an old family friend for help finding specialists, which if we find one willing to take my case, will take my college fund and my mom's savings.
  7. pickwithaustin

    pickwithaustin Staff Alumni

    It sounds like you need to seek out a different doctor if the one you have is unable to determine diagnosis. I had some computer trouble with one of my cars and had it in one shop that kept trying one thing after another to no avail in fixing, so we eventually pulled it and took it somewhere else. Same theory. Are you covered under your parents health insurance? Generally it is easier to get attention for things like this when you're younger vs. when you're older, so it just sounds like you've been seeing the wrong people for treatment. Perhaps consult with the insurance company and get a recommendation from them for someone specializing and within your network. To note, depression situations can cause psychosomatic pain, particularly migraines, so I would not totally dismiss that as a possibility. The mind is a powerful device and it can often mislead us, as many here are full aware.
  8. Sadeyes

    Sadeyes Staff Alumni

    I am also in chronic pain, as I know others are here, and life can be about trying to quiet the monster all day long...Cedar Sinai has a wonderful pain clinic which is nationally recognized if you are near there...also, The Un Hospital in San Francisco (not sure the exact title) has so much research re pain management, and some good clinical trials going on...can you investigate NIH and see what is going on in your area? I might be able to get an infusion treatment which my insurance would not pay for by being in a clinical trial in the Fall...and the depression that comes with being in pain is such a cycle...depressed and in pain and depressed because of pain...I know; I am living it too...keep does feel better to share
  9. Ajean

    Ajean Well-Known Member

    Good luck on getting into the clinical trial, Sadeyes.

    And we've been trying to get referred out to specialist but the insurance and even my actual doctors are reluctant to even consider it. And my case manager has been missing in action for at least 8 months now.

    And the depression was well controlled when this all started, I hadn't tried to hurt myself in over a year, I had friends, I was doing well in school, I was genuinely happy. Then all of the sudden I couldn't even think or leave my house. It crushed me. My life and personal development literally came screeching to a halt.
  10. Sadeyes

    Sadeyes Staff Alumni

    Can you go to a patient advocate and get your case reviewed? I have raised heck at the hospital where I am treated so that I can finally be heard...the last thing they want is for someone to call the State Department of Health and I threatened everything until I was treated...I am not going down silently, and I suggest you do the same
Thread Status:
Not open for further replies.