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Chronic Pains. UGH!

Discussion in 'Rants, Musings and Ideas' started by ThePhantomLady, Aug 25, 2015.

  1. ThePhantomLady

    ThePhantomLady Safety and Support SF Supporter


    It really hurts today. My back is so tight and no matter what I do it won't go away. :grumpy:

    I have chronic back and hip pain but it's not always this bad. There has been a shift in the weather and this plus carrying groceries yesterday messed up my back.

    I was born with a twist in my spine and the curvature only gets worse as the years progress. When I was 10 I was told that I might need a back brace to reduce it through my early teens. My back got worse and worse but my mum refused to listen and didn't want to take me to the doctor.

    My worst symptoms were muscle knots forming under my shoulder blade because my spine was pulling wrong on them, and because of the placement no one could get to them.

    At the start of 2014 I suddenly got really, really bad pains in my lower back and hip. I couldn't move (I was only paralyzed a few times) but just the slightest movement hurt so bad I thought I'd pass out so I just laid there crying. I went for months like that before going to my doctor...
    I was given an X-ray that didn't show why I was in that much pain and my doctor didn't bother to run more tests; he just put me on mild pain relief. (that I at the time wasn't too happy to take as I had been addicted to paracetamol as a teen). The pain relief didn't help, I kept going to the doctor and was told there was nothing he could do.
    (I haven't been given any scans to look for other causes)...

    I went to physio-pilates on my own accord, which made me worse. One of the sessions I was in a lot of pain and the physio therapist looked me over and within a minute diagnosed me with a disc bulging out of the lower half of my spine.

    The scoliosis I have means that the curve of my spine will continue to distort and I'm so scared that disc is going to slip and what it could be pressing on.

    I have some mornings woken up with my legs paralyzed from the top of my hips down and that is so damn scary. My doctor isn't even impressed by that.

    I am on stronger pain relief now, a daily mix of paracetamol, ibumetin and Tramadol Retard.

    But some days it just hurts more than others. Today is one of those days and I just want to cry and scream. I can't get comfortable no matter what I do. I feel so damn trapped. I can't go anywhere and there's nothing that can lower it.

    I have a really high threshold for pain, and the fact that this can hurt this bad scares the living sh't out of me.
  2. DrownedFishOnFire

    DrownedFishOnFire Seeing is Believing Forum Pro SF Supporter

    Sorry you are going through this and is having a doctor that seems not to be listening to you. I do not know your healthcare system but when we have issues sometimes we bypass the system and go to a chiropractor that can tell us or help us in some cases refer us to a specialist that is more advanced than a general practioner.
  3. Petal

    Petal SF dreamer Staff Member Safety & Support SF Supporter

    I feel really bad for you. I take tramadol too and ibuprofen (only about twice a week- thats about as long my GP will give it for) for sciatica. The pain is bearable, nothing like your pain but I do know how you feel.

    My brother was in a car accident in 2012 and is still suffering with medical conditions I don't know the name of, he gets injections every 3 months (i think they are cortisone) and they help him. My cousin was also in an accident and hurt her leg/back for life, she takes gabapentin and says it's brilliant.

    I know you are trying your best but maybe try other meds too, and try and give your body a break when possible!
  4. ThePhantomLady

    ThePhantomLady Safety and Support SF Supporter

    Petal, I am so sorry to hear you have pains, and about your brother too. It must have been scary as well.
    But happy to hear that the meds are helping!

    Just because you have 'less' pains than me, that doesn't diminish the pain you feel. I suppose any amount of pain experienced for an extended time is bad.

    I'm just losing my mind. It isn't going down again.

    I changed my doctor a few times, but it doesn't seem to be taken seriously. When I got prescribed the stronger and longer lasting Tramadol Retard, I took 'advantage' of seeing a young inexperienced doctor. The general consensus with the doctors I have seen is that I'm too young to be in that kind of pain, and get too strong medicine.

    In defense of the first doctor who examined me, I didn't seem to take the session too seriously.
    If I experience pain in public I'll laugh it off, and I actually started giggling as he was pressing his hands into my spine "Hahaha it feels like you're stabbing me with a dull knife hahaha!"
  5. Petal

    Petal SF dreamer Staff Member Safety & Support SF Supporter

    lol you have a great sense of humour.

    I've taken tramadol today, codeine, ibuprofen for pain. It's not a walk in the park, it can be quite scary when the pain gets sharp and nothing tames it down.

    The younger doctors are much different to the older ones I think because they have not witnessed the addiction in patients yet, I am not addicted to tramadol but the older doctors treat you as if you are because they know how addicted the meds are (if that makes sense lol).

    Anyway, I hope you are pain free today, :hugs: to you :)