INFO and resources for those with ME/ CFS

Discussion in 'Mental Health Disorders' started by soliloquise, Jan 12, 2009.

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  1. soliloquise

    soliloquise Well-Known Member

    1/ http://www.mecfsparents.org.uk/readingroom.htm

    and a forum:

    http://www.mecfsparents.org.uk/cgi-bin/Yabb2.1/YaBB.pl


    i don't yet know how this site is but have just joined.

    2/ http://www.youreable.com/TwoShare/getPage/Welcome/Introduction

    i am a member here.. site is a bit slow but has some v good uk info on

    3/ http://health.groups.yahoo.com/group/fmscfsandpregnancy/

    4/ http://www.pediatricnetwork.org/parenting/parentscorner/LN00-Parents_with_CFS.htm

    5/ http://www.freecycle.org/

    great site to get and share unwanted toys/ furniture/ baby stuff etc

    6/ http://uk.freecycle.org/

    the UK version of the above

    7/ http://www.afme.org.uk/

    action for ME

    8/ http://www.meassociation.org.uk/

    9/ http://www.suicideforum.com/

    site for those in crisis, support community for people with chronic illness and mental health probs... excellent supportive community. i help out on here

    10/ http://www.brainfog.org/

    online community for ME/ cfs

    11/ http://www.foggyfriends.org/

    nice online support community with lots of research info, but the mods " can " be a bit anal there

    12/ http://www.ahummingbirdsguide.com/whatismessummary.htm

    probably the best info on ME out there

    13/ http://www.satori-5.co.uk/

    scotland based site

    14/ http://www.nmec.org.uk/

    national ME centre

    15/ http://www.supportme.co.uk/

    16/ http://www.25megroup.org/

    support for the most severely affected

    17/ http://www.meactionuk.org.uk/

    18/ http://www.meactionuk.org.uk/Enough_is_Enough_-_010109.htm

    interesting article challenging the NICE guidelines

    19/ http://www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm

    difference between ME/ CFS explored

    20/ http://www.co-cure.org/

    site for ME/ cfs/ fibro

    21/ http://www.foggyfriends.org/links.htm

    a large amount of links and resources here

    22/ http://www.tymestrust.org/

    site for young ME suffers

    23/ http://www.co-cure.org/infores.htm

    medical research info

    24/ http://www.co-cure.org/Good-Doc.htm

    recommended / informed drs

    25/ http://www.co-cure.org/addlink.htm#dir

    comprehensive lists and links

    26/ http://www.co-cure.org/addtalk.htm#onlinebbs

    online forums and chat support for ME

    27/ http://www.co-cure.org/addtalk.htm#discussion

    newsgroups

    28/ http://www.co-cure.org/addlink1.htm#publications

    helpful publications

    29/ http://www.co-cure.org/addlink.htm#govt

    worldwide government agencies/ authorities

    30/ http://www.co-cure.org/addlink.htm#peds

    pediatric resources

    31/ http://www.co-cure.org/update.htm

    updates on clinical theory and practice

    32/ http://www.co-cure.org/infomed.htm

    medical articles on ME

    33/ http://www.co-cure.org/infoact.htm

    advocacy and support articles

    34/ http://www.surestart.gov.uk/

    surestart support parents and i have heard good things. not used them yet tho as i am still pregnant

    35/ http://www.mumsnet.com/

    parenting support community

    hope these help somebody
     
    Last edited by a moderator: Jan 12, 2009
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