Does anybody suffer from this debilitating, awful illness? I've suffered since 2008. I am moderately-severely affected, on some days, severely affected only. I rarely go out, I'm now in need of a wheelchair because it's that hard to go out, I haven't got one yet, so when I do go out, (very rare), it's hard for me. It's hard just to get around the house. I have a bath once a month, if that, because of how it affects me. I am in bed for most of the day. Rarely I will go downstairs for the day and lie on the sofa, but that doesn't happen at all much anymore. I'm on narcotics for pain relief, they don't help anymore, because of tolerance, so I've been trying to come off of them but because of my drug abuse, it's really hard as I keep taking large doses, screwing up me coming off of them and having to start again. It can be life threatening if it's very severe, it has taken lives before, but luckily I'm not that severe... part of me wishes I will be, yes, I am screwed in the head... :dry: (or just mentally ill.) There is no test for it, only elimination, so I've had a lot of grief in hospital multiple times because nothing showed up, as well from family members, and "friends", even strangers. I'm in the process of confirming the diagnosis, I see the doctor on the 15th, I will be giving him a letter because he has said some things that are very stupid, and they have upset me. I do hope this letter speeds up the confirmation process, as I need to get a wheelchair, and I need the diagnosis confirmed for my application for Disability Living Allowance. The symptoms I suffer from are... fatigue, exhaustion, joint pain, muscle pain, widespread body pains, chest pains, aches over my body, sharp pains in my body, eye pains, headaches, noise and light intolerance, food intolerance's, alcohol intolerance, sore throats, lethargy, nausea, breathing problems, heart problems, balance problems, sleeping problems, shakiness, temperature irregularities, digestive problems, memory problems, concentration problems, trouble absorbing what's being said to me(even more so), trouble with speech(even more so), confusion, mental fatigue, basically brain fog, postural hypo tension, dizziness, vertigo, feverishness, I think that's all of them. As you can see, I suffer from quite a lot of symptoms, obviously I do not suffer from them all in one go, but these are the ones I've suffered with since developing M.E, and much of them I still suffer with daily. I'm not sure where to post this, but I'm wondering if anyone else here suffers with this, and I'll also use this thread to talk about my struggles with this illness, and the status of the process of confirmation, if it's alright. Please don't attack me here either, I've gotten a lot of attacks about my M.E, by family, "friends", doctors, and even strangers. They say I'm just attention seeking, faking it, it's in my head, it's psychosomatic, it's me being psychotic, etc. If you are going to attack me, please don't... I just can't deal with it. I realize this forum is open to all, including guests, so I'm feeling vulnerable. Thanks for reading.