The truth of the matter...

Brittless

Well-Known Member
#1
I am tired writing about my pain,socializing when it hurts to exist... being a human being when I feel like complete and utter crap. I feel more like an ogre or a troll or Godzilla. Brittzilla. That's me. Right now, at this moment in time. I am in PAIN. My whole existence is pain and I don't have the urge or motivation to mind over matter the situation. I want people to know at this point in time I do not fit in to their perfect little bubbles of joy, delight, activities, friendships, parties, wit, humor, laughter, and much much more.

They are all pointless to me. The only thing that matters to me right now, right in this moment is relieving the symptoms and pain that accompanies it. that is the only thing that matters to me in this life, at this juncture. Id say sorry to family and friends but I'm not.. if you want me to care for you better then you should want to see me GET better.

I want them to know I am not a person. I was stripped of that privilege. I want people to know how lucky they are for havingg the privilege of being a PERSON, with feelings and hobbies and personality and ambition and goals. It is bad to compare, but how can you not? everyone does it. Everyone who is not in utter pain should see how lucky they are. but of course they don't know anything else and my account can't sway their minds.

There are a multitude of awful things, some of which have happened to me, and out of all of them, the chronic illness and pain is the worst. Not only does it make you physically weak and sick and fatigued it attacks your mind. It attacks your soul. Nothing of value escapes.

I try to be strong but really I think what's happening is wrong and sitting by and doing nothing about it is driving me to insanity. So, I need to start doing something about it, doctors, specialists, and sadly debt... here I come. The world is going to know how many people are miserable and desperate and in pain in the U.S. and how little is done about it. Americans need to start caring more. Social change and justice needs to happen.

I am tired of complaining about it, writing about it, here in my little anonymous corner-- people not really understanding or getting it. People treating me as if I am overreacting or someone of insignificance because I can't muster up the will to be anything but an effigy of pain, pain, pain, pain and then depression.

I am tired of who I am being battered everyday and stomped to the ground by these symptoms. and god, you do not know how utterly and fully fed up I am with people assuming they know what I am going through when they don't experience what I do, telling me how I actually feel, telling me what my problems actually are.

Don't insult my intelligence. I know exactly who I am. I was a girl, now a woman who was strong, feisty, bright and ready for the world who is now trapped inside a cage of pain. My name is Brittany. my name is not Figment of (Insert name)'s Thoughts.

Another thing, if you are not a doctor then do NOT offer your medical opinion because it's not a medical opinion. It is merely an opinion. Your opinion doesn't get that title. This is not in response to those who do experience chronic illness yet to those who do not.

I realize everyone wants to have their own enlightened version of ideas about everything in the world but the truth is sometimes you just do not know. I appreciate the support, I appreciate the kindness but what I do not appreciate is the pretentious and uneducated diagnoses, the abject disregard of my actual experiences, and the outright and blatant insults.

This is not a rant, not merely a rant, this is a cry, a cry for change in the U.S., a cry for actual help.

The thing of most pressing and precious importance is my physical illness. The mental illness I can deal with later. Please tell me if you are in physical pain, that you understand that?
 

SinisterKid

We either find a way, or make one.
SF Supporter
#2
I could not have said, 9 yrs ago, I had any inkling of what you are talking about. Today, I have great and increasing empathy for anyone who is suffering the appalling effects of constant pain. Now I know pain and it knows me, intimately. Today, I take another step in trying to find a explanation for my own pain where there appears to be none. Its not the treatment of pain I seek, its the cause. Once I understand the cause, then we can work on treatment. But I do know this much, modern medicine is not the miracle worker it once was thought to be. There are constant limitations, most of them financial, and knowledge of areas such as mental health and neurological health remains pretty much in the dark ages. The constant lack of quality sleep, coupled with the constant pain means my mental health is also suffering. No one outside of this forum seems to get that.

I have the sincere hope Britt than you can seek and find some answers to your own predicament. Someone of your tender years, with a life to lead, should not be suffering in the way you do. Its something I can only guess at or attempt to imagine. But I do know what its like when the only option is to lie in silence, in the dark, using [X,Y,Z] to try and relieve the pain. That is not what living is about.

As for those who think they know, its like me saying I understand anyone with a eating disorder. I don't, I cant and probably never will. I respect anyones intentions, but when even medical professionals tell me they don't know, what chance that anyone else will know? That may sound dismissive, but to me, its the truth as I see it.

Please, take care of you, stay safe and good luck in your search for answers.
 

Brittless

Well-Known Member
#3
But I do know this much, modern medicine is not the miracle worker it once was thought to be. There are constant limitations, most of them financial, and knowledge of areas such as mental health and neurological health remains pretty much in the dark ages
Then the way medicine is viewed needs to change too because I don't comply, i don't adhere to this. We can access all human knowledge by pulling out a tiny device from our pockets. We can fly, we can treat cancer, we can blow up entire countries if we so choose.

And yet something like this, we barely bat an eye over? Did you know that recent studies came out saying that modern medicine may be the cause of some autoimmune diseases? Meaning that autoimmune diseases could be a result of modern meds.

If they can cause it, I believe they can fix it.

We have all the resources in the world and yet we don't understand the entirety of the human body? This is bullshit. Either the funds are going toward the wrong things like war, or there is more information out there that is hidden from the public or that most of the public can't access because it can't afford to.

I haven't even had access to the most basic of tests... Things need to change. I can't imagine so many people in what is considered a developed country living their life in such misery. Something is wrong in this scenario, especially when there is such stigma about free healthcare in said country-- a country that lends so much of its taxes to the building of a better nation and a better world.

and right here, because of social stigmas, the U.S's own citizens aren't getting taken care of?
 

SinisterKid

We either find a way, or make one.
SF Supporter
#4
One consultant told me, many years ago now, and I quote,

"Medicine likes to pigeonhole patients. If you fit into box A or B, we know what is wrong and how to treat it. If however, you don't fit into any of these boxes, we have neither the knowledge or the technology to offer a solution"

I have no idea if that was said to placate me because my condition has no formal diagnosis, or if it were a cynical response to the fact that the NHS in the UK is seriously underfunded. But it could also have been the simple truth.

No new antibiotics have been issued to the market in significant quantity in the last 20 yrs. Why? Because there is no money to made in the research of them by the pharmaceuticals. Now, viral and bacteria infections are resistant to most forms of antibiotic. That is the harsh reality of a system that founded on profits.

I am ignorant of what you face in the USA as far as healthcare is concerned. It appears, on the surface, a very distorted system.
 

Brittless

Well-Known Member
#5
It just baffles me that more people aren't in "change mode" but then that's the thing with physical illness. It's hard to fight for ourselves when we're already fighting a physical battle, one of pain, fatigue, exhaustion, and incoherency.
 

sickanon2

Well-Known Member
#9
As someone who recently became chronically ill (9 months and counting) you have summarised exactly how I feel. Being in chronic pain is an isolating and dehumanizing experience. I can't offer you any words of consolation, other than saying that I know what this hellish landscape is like.
 

SillyOldBear

Teddy Bears Rule! 🐻
Staff Alumni
#10
Thank God I am old! I just got one of my hospital bills. Over $38,000 - cut down to over $3,o00 because I am old and have medicare. But I know I have another one out there for about $4200, and I am sure there are more coming. My out of pocket limit should kick pretty darn soon. But I don't think I know anyone who could handle a $38,000 hospital bill. I do believe it is part of the plan. The old and the sick will soon be dying in droves because they can't afford care. And wouldn't that make the world a much better place. :(:confused::eek:
 

Brittless

Well-Known Member
#11
This week I take the plunge into the medical world again. I'm scared but determined. Being considered a youth, I don't know how high my medical bills will be... Give me strength for the adversity that awaits.
 

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