Hi there
I've got EDS as well. I was dx a long time ago (1987) and I try as much as possible to let it affect me as little as possible. In doing so I feel like I fended off as many symptoms as I could for a long time. I played sports (non contact) as a kid and a teenager, I went to the gym sporadically into my late 30's and likely would try to do some there again if I could afford to keep going now. I do have some luck striking it with Drs that give me pain meds (vicodin) so that's good and a little weed on the side sometimes if things are bad. (I'm in a legal state - CO)
When I was dx there were only 4 types so I was typed as 1 & 4 but who knows what they were type me as now. I'm hypermobile though, probably a Beighton 6 because I'm old LOL We were pretty much taught not to do "tricks" as kids and it's a "use it or lose" it kind of thing in some of those cases. My wrists dislocate several times a day and I just pull them out and put them back in. My ankles are pretty bad too.. and knees aren't far behind. Pulling open a door will sometimes yank out a shoulder and that's kind of hard to get back in alone but.. whatever. I'm getting along as best I can. I hold down a job in corrections for the state, albeit graveyard shift. I don't think I could likely handle another one due to too much action but I'm still pushing along. Sometimes I feel like it's too much -- especially if I have to run errands and go to work. It is what it is though. However, this is my attitude today.. another day I just want to curl up and not wake up sooo...
What do you feel like you're most affected by since your dx? Do you work? What's your age/age range?
Sorry I didn't catch this till now, I've been out of commission with freaking shingles... and then a kidney stone. hahah see, EDS isn't my only malfunction.
