I was diagnosed last year but I'm pretty sure I've had it since I first started my period. It's affected my life so much and every time I think I'm managing it I get knocked back to square one again. I had surgery a year ago and I've been on continuous birth control since then but I started having problems a few months ago when I started breakthrough bleeding and cramping while taking it. I had to double pills (for over a month) until I could see my ob last week and she told me to stop them completely for this week to see if having a cycle helps... and oh boy, I have been in so much pain the last few days. I'm stuck in bed with a heating pad/ice pack all day and I can't get any sleep at night (not that it's too far off from the usual... but the added pain is pure hell). My hormones are a mess at the moment so my mood/anxiety/etc. have all been pretty rocky too. I'm planning on seeing a specialist soon but I'm not sure what more they can do to help... It's become such a burden and not something I wanted to deal with on a daily basis but more problems seem to keep showing up as time goes on. It's beginning to affect my mental health as well and I'm having problems with that already, without the addition of my endometriosis Can anyone relate? How are you handling it if you're in the same boat? I don't have anyone around me who has it so I'm pretty much alone in how to deal with this.