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Grief and Acceptance

Livelife

SF Supporter
#1
My mind appreciates the space to dump this out.*blue


I am not who I used to be. I miss her.

Illness that is not treatable and will end up killing me has impacted me and the manifested towering alteration has been insomnia I've had for about 4 years. Some time before I showed up in the forum. I have no doubt it's a result of a disease process I have. Practicing doctors are just clueless of the connection even though it's written in endless medical reports. It keeps me in a state of fatigue most of the time. The occasional 2 or 3 times a month I sleep until 6 or 7 am I wake up like my old connected self. With an energetic spark to bring into the day. It's amazing the difference it makes mentally, emotionally, spiritually and so with my perceptions of self and the world.

It has changed my personality; how I engage with others, how I think and process. Some decisions and choices I make take more time and are harder that shouldn't be. It takes energy to engage now. The body and the brain are so integrated and it has become apparent I can't give the body the support it needs. I've tried now with more approaches I can count, thrown treatments and money at it all. It's a lost cause.
Western doctors don't understand or help. The Eastern practitioners understand but can't seem to help. The sleeping aid I finally acquired months ago that took months to obtain does it's job of giving 4 hours of medicated "sleep" but not the kind needed for systems revitalization. It has saved me from losing my sanity completely though. I did have a 12 day episode 14 months ago with no sleep at all and would have ctb if I had not acquired some type of intervention. I just appear to be stuck with the issue now until I die. Sleep hygiene is not lacking. A long list of supports are still used or have been sufficiently tried. And I never have been able to nap which is now a need.

My brain although continuing to prove it has more capacity than I give it credit for these days, really has been affected. I can't mentally keep up with people like I used to for more than a short time. I'm too fatigued. It just fucks up thought process. It is what makes me feel and come across as impaired. The substantial number of people that happen to be around my age in the group I've recently joined related to nature and conservation and community are still brilliant and beautifully communicative on topic and able to integrate info and knowledge and use the related technology like a second skin. I've watched now for 2 months. I'm not going to be able to keep up or be a productive part of it. It is having a two fold impact....I'm being exposed to information and experience I deeply enjoy but it's being mirrored in various ways that I don't have the capacity to keep up. And I've asked enough questions. My lens could be affecting this all. Who knows.

So I'm on my own with this. Feeling washed out all the time is an intolerable state. I want to energetically go and do and be and play still on a daily basis. And I can't show up that way anymore consistantly. Thinking stays muddy and it's obviously the reason I have some anxiety. And so want to usually just stay away from others.

All this strongly appears to be from the sleep deprivation.

I have to accept this state of being. Of being bone weary tired. I've fought it for so long because it feels like it would be the end of me to not do so. It is representing an active aspect of a drawn out dying process to me. I don't want this many years of nonexistence while doing it. Especially with the being alone. But it finally feels like fighting with it, instead of being a potential source of movement to manifest if I was 'victorious', is only an additional constant drain of energy. I'm burned out from the fight. And from having to think about it.

So grief might be an accurate term, something needing to be embraced. Or is it just acceptance. All I want to do is sleep. And I can't. And it's only 7 in the morning.
 
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MisterBGone

AS I AM ✅
SF Supporter
#2
I was listening to a neurologist speak a little while back. And he was basically saying that around the 16 hour mark going without sleep, you've basically begun to do low-level brain damage to yourself. Because the ...& I totally forgot the medical terminology he'd used, or neurological ones, of which, with your background, would be no problem-o! But at the time of hearing it, it made perfect sense to me. It stated that you don't give your brain a chance to rid itself of the waste that is so essential each & every day /or/ night.

Anyway, sorry to learn of your troubles and they do maybe seem insurmountable, maybe. . . Do you think you can improve the quality AND quantity of your sleep with an acquired skill, or talent, a learned activitity in other words, of "nap-taking?" I'd highly recommend it. And I'm sure you've tried. But if you could somehow commit to it, and figure out how to get yourself to take &/or get some rest each and every day. Then that might help aid in this healing process.

Because I agree with you on all of the damage that is being done, just even before listening to that guy speak. And I don't think he was a doctor. So not in medicine. But studied & researched the brain itself. I would love to see you live with less regret. I know though, that-that is "easier said than done!" At some point maybe you can reach a state or stage & place of acceptance, and while acknowledging & realizing all of the remarkably magnificent things you've done to make meaningful change and difference in others' lives.

It is o. k., to let go & leave that self, or identity behind. You are what you do, but you can still be something quite exceptional now. Even if it doesn't seem that way. You just have to find a sense of purpose. What that is, I don't know? But I do believe that it is out there.

And many others I'm sure, are in similar circumstances, with being lost at this phase of their lives. Facing simliar or the very same questions, and doubts, and giving up on or of - "hope." Which is tragic, in a way. Because they, like you, (still) have so much to offer. It's just really hard to see, hard to think, hard to do much of anything... when you can't get some sleep~

How to get the mind to quiet down for a minute. So you can settle, that is the question & the ultimate goal, then - I think. From the outside, now okay. . . You do really seem to put yourself under the microscope & examine in a very critical way, and judgemental (one) - how inadequate it all seems. Whether that is by or in comparison (to what was before, or what should be now) or not. It is nonetheless there.

I see somebody who is hyper analyzing & scrutinizing every last detail. Minutely so, and it such that if any of the rest of us in this world were to hold ourselves to those high standards, it'd be sure to fail. The lens is tainted, or colored, shall we say? Subjective, then. And almost darkly so.

I suppose it is hard when you feel this way and think about any misperceived disappointment(s). But you are not alone in this. I'd bet many are in your same shoes, with similar (maybe not the same), predicaments. It feels that way - when you are so isolated from society. And after having had lived such a social life in a setting that quite literally saves lives.

So it is all quite natural, and perfectly reasonable - human, in fact - for you to feel this way. That I can understand. I hope that you can try to understand, that there might be another way. Even if your skepticism doesn't allow you to see or feel how it could be better, and only different. If any of this offends you, just keep in mind this, it comes from a LOSER - ha!
 

Livelife

SF Supporter
#3
I was listening to a neurologist speak a little while back. And he was basically saying that around the 16 hour mark going without sleep, you've basically begun to do low-level brain damage to yourself. Because the ...& I totally forgot the medical terminology he'd used, or neurological ones, of which, with your background, would be no problem-o! But at the time of hearing it, it made perfect sense to me. It stated that you don't give your brain a chance to rid itself of the waste that is so essential each & every day /or/ night.

Anyway, sorry to learn of your troubles and they do maybe seem insurmountable, maybe. . . Do you think you can improve the quality AND quantity of your sleep with an acquired skill, or talent, a learned activitity in other words, of "nap-taking?" I'd highly recommend it. And I'm sure you've tried. But if you could somehow commit to it, and figure out how to get yourself to take &/or get some rest each and every day. Then that might help aid in this healing process.

Because I agree with you on all of the damage that is being done, just even before listening to that guy speak. And I don't think he was a doctor. So not in medicine. But studied & researched the brain itself. I would love to see you live with less regret. I know though, that-that is "easier said than done!" At some point maybe you can reach a state or stage & place of acceptance, and while acknowledging & realizing all of the remarkably magnificent things you've done to make meaningful change and difference in others' lives.

It is o. k., to let go & leave that self, or identity behind. You are what you do, but you can still be something quite exceptional now. Even if it doesn't seem that way. You just have to find a sense of purpose. What that is, I don't know? But I do believe that it is out there.

And many others I'm sure, are in similar circumstances, with being lost at this phase of their lives. Facing simliar or the very same questions, and doubts, and giving up on or of - "hope." Which is tragic, in a way. Because they, like you, (still) have so much to offer. It's just really hard to see, hard to think, hard to do much of anything... when you can't get some sleep~

How to get the mind to quiet down for a minute. So you can settle, that is the question & the ultimate goal, then - I think. From the outside, now okay. . . You do really seem to put yourself under the microscope & examine in a very critical way, and judgemental (one) - how inadequate it all seems. Whether that is by or in comparison (to what was before, or what should be now) or not. It is nonetheless there.

I see somebody who is hyper analyzing & scrutinizing every last detail. Minutely so, and it such that if any of the rest of us in this world were to hold ourselves to those high standards, it'd be sure to fail. The lens is tainted, or colored, shall we say? Subjective, then. And almost darkly so.

I suppose it is hard when you feel this way and think about any misperceived disappointment(s). But you are not alone in this. I'd bet many are in your same shoes, with similar (maybe not the same), predicaments. It feels that way - when you are so isolated from society. And after having had lived such a social life in a setting that quite literally saves lives.

So it is all quite natural, and perfectly reasonable - human, in fact - for you to feel this way. That I can understand. I hope that you can try to understand, that there might be another way. Even if your skepticism doesn't allow you to see or feel how it could be better, and only different. If any of this offends you, just keep in mind this, it comes from a LOSER - ha!
Thank you for your thoughtful response. I'll send a PM.
 
#4
My mind appreciates the space to dump this out.*blue


I am not who I used to be. I miss her.

Illness that is not treatable and will end up killing me has impacted me and the manifested towering alteration has been insomnia I've had for about 4 years. Some time before I showed up in the forum. I have no doubt it's a result of a disease process I have. Practicing doctors are just clueless of the connection even though it's written in endless medical reports. It keeps me in a state of fatigue most of the time. The occasional 2 or 3 times a month I sleep until 6 or 7 am I wake up like my old connected self. With an energetic spark to bring into the day. It's amazing the difference it makes mentally, emotionally, spiritually and so with my perceptions of self and the world.

It has changed my personality; how I engage with others, how I think and process. Some decisions and choices I make take more time and are harder that shouldn't be. It takes energy to engage now. The body and the brain are so integrated and it has become apparent I can't give the body the support it needs. I've tried now with more approaches I can count, thrown treatments and money at it all. It's a lost cause.
Western doctors don't understand or help. The Eastern practitioners understand but can't seem to help. The sleeping aid I finally acquired months ago that took months to obtain does it's job of giving 4 hours of medicated "sleep" but not the kind needed for systems revitalization. It has saved me from losing my sanity completely though. I did have a 12 day episode 14 months ago with no sleep at all and would have ctb if I had not acquired some type of intervention. I just appear to be stuck with the issue now until I die. Sleep hygiene is not lacking. A long list of supports are still used or have been sufficiently tried. And I never have been able to nap which is now a need.

My brain although continuing to prove it has more capacity than I give it credit for these days, really has been affected. I can't mentally keep up with people like I used to for more than a short time. I'm too fatigued. It just fucks up thought process. It is what makes me feel and come across as impaired. The substantial number of people that happen to be around my age in the group I've recently joined related to nature and conservation and community are still brilliant and beautifully communicative on topic and able to integrate info and knowledge and use the related technology like a second skin. I've watched now for 2 months. I'm not going to be able to keep up or be a productive part of it. It is having a two fold impact....I'm being exposed to information and experience I deeply enjoy but it's being mirrored in various ways that I don't have the capacity to keep up. And I've asked enough questions. My lens could be affecting this all. Who knows.

So I'm on my own with this. Feeling washed out all the time is an intolerable state. I want to energetically go and do and be and play still on a daily basis. And I can't show up that way anymore consistantly. Thinking stays muddy and it's obviously the reason I have some anxiety. And so want to usually just stay away from others.

All this strongly appears to be from the sleep deprivation.

I have to accept this state of being. Of being bone weary tired. I've fought it for so long because it feels like it would be the end of me to not do so. It is representing an active aspect of a drawn out dying process to me. I don't want this many years of nonexistence while doing it. Especially with the being alone. But it finally feels like fighting with it, instead of being a potential source of movement to manifest if I was 'victorious', is only an additional constant drain of energy. I'm burned out from the fight. And from having to think about it.

So grief might be an accurate term, something needing to be embraced. Or is it just acceptance. All I want to do is sleep. And I can't. And it's only 7 in the morning.
I'm so sorry that things are this way..I've come to accept my mental condition,not fully but upto some extent..the one prayer that helped was tong len..like asking God to give you all the similar sufferings that go through..like literally asking God to transfer those suffering to you and asking God whatever good God has given you and God's mercies to be transferred to them..it made me feel calm..I hope your sleep situation gets better..I'm sorry..hugsss*sadhug*sadhug
 
#5
I'm so sorry that things are this way..I've come to accept my mental condition,not fully but upto some extent..the one prayer that helped was tong len..like asking God to give you all the similar sufferings that go through..like literally asking God to transfer those suffering to you and asking God whatever good God has given you and God's mercies to be transferred to them..it made me feel calm..I hope your sleep situation gets better..I'm sorry..hugsss*sadhug*sadhug
similar sufferings that people go through **
 

Livelife

SF Supporter
#6
I'm so sorry that things are this way..I've come to accept my mental condition,not fully but upto some extent..the one prayer that helped was tong len..like asking God to give you all the similar sufferings that go through..like literally asking God to transfer those suffering to you and asking God whatever good God has given you and God's mercies to be transferred to them..it made me feel calm..I hope your sleep situation gets better..I'm sorry..hugsss*sadhug*sadhug
I am familiar with Tonglen🙏🏽I'm so glad it was helpful for you. Thank you for sharing and for your support and thoughts☺️ And for the hugs*hug
 
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Innocent Forever

🐒🥜🍌
Staff Alumni
SF Supporter
#8
Sleep is absolutely essential and living without it would definitely affect your capacity in every way. I'm getting more sleep than you and feel exhausted almost all the time from not enough.

Something I was told a few times although I've no idea if it's true is that mindfulness practices can rejuvenate the brain in the same way sleep can.

All the love
 

alice202

SF Supporter
#10
Livelife

I am sorry this is happening to you, and I understand how hard it is to find help. I also have trouble sleeping (although it sounds like yours is worse because of your disease). Doctors either give you drugs, which help you sleep but make you tired the next day, or they offer useless platitudes. This week I am going for a sleep study which will rule out any breathing problems. Have you had a sleep study?

The one thing I have had some success with is hypnosis. There is a website from which I have downloaded some 'tapes' to listen to after I go to bed. It doesn't always work, but sometimes it does. I can feel myself moving into the sleep zone. If I'm still awake at the end of 30 minutes I just start it over again. It doesn't have any aftereffects, its harmless, and its inexpensive.

I understand the feeling you have that you are a different person. Its hard to function when you haven't had enough sleep. I wish you health and healing.

Alice
 
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Livelife

SF Supporter
#11
I just read this and it touched me.

We can’t fix grief, but we can continue to ‘show up’ when all the crowds have dissipated and the true permanence of loss is beginning to be felt. We can sit with and bear each other’s grief without trying to fix it or solve it or get over it. We can hold our loved ones as they weep, we can simply be there to witness their pain, let them know that we can bear it with them, that it is not too much for us. We can show up, not knowing what to say or do, but to keep an open heart and an open mind. And we can do that again and again and again. That is what our grieving loved ones need; our presence.

Unknown
 

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