Empathy and Advice Welcomed I'm so done

[atlas1845]

I have a debilitating chronic illness. It's incurable. My referral to a specialist for management was denied. That's what I was holding out hope for. But they won't help me and I can try getting another referral but even if they accept it it'll take at least a year waiting and they still can't cure it.

I have a sleep disorder. That's incurable too. It's neurological, I'm past the age where I could've grown out of it. It's just permanent now. It's so under researched there's barely any treatments and there's even less available on the NHS.

I can't afford private healthcare. I don't want to deal with this anymore. I want a normal life. I want a shot at a life where I don't have to deal with this but that's not possible. I don't get to know what a healthy life feels like.

 

[1Lefty]

I'm sorry for your health issues
I don't have any advice, but wanted to let you know you're being seen
Keep posting

peace

 

[may71]

I'm sorry you're going through this.

It's ok if you don't want to say what what you're condition is, but it's hard to give specific advice without knowing. If it would be easier, it would be ok to PM me about this.

There may be some alternative treatments and self-treatments that could help. So for example, I think there are some acupuncture schools in the UK that will give free treatments at certain times of the year.

I hope things can get better soon.

 

[BlackSheep 007]

Just a tip:
I do not know, from what country you are writing from (guess: US..). To get adequate treatment move to a country that has a real social welfare and health system. I can only talk about Europe - but once you pay the monthly association fees (between 150 EUR in Spain to 350 EUR in Germany) you are coverd a (nearly) 100%. Nobody will refuse treatment that is needed, due etc. Nor medication to sleep - and trust me there is medication, strong enough for you. Doctors do not prescribe the easily - that is the point. Problem is: you might have to stay for an extended period to get all sorted out.

Otherwise:
I have sleeping problems too. It shifted - sometimes I sleep from 1500 in the afternoon and wake up night. Most of the time I do not sleep long - and wake up at 01:00. Nothing I can change that - I refuse to take medication. So what? I clean the apartment, do night walks, watch a nice movie - the early morning hours are the best.

COURAGE! Time will always help (and I say this, being an old man).

 

[Goodbyekitry]

Hello. I have joined bc Ive developed a chronic illness and am fairly suddenly bed bound/homebound and constantly uncomfortable. And there’s no end in sight.
this may be one of the places I can say, “I pray for cancer”, so there’s be an end . I am looking to hear from people considering ‘ things ‘ through such a lens.
One blessing I have, is my sleeping pill WORKS! BUT, I have extremely vivid dreams and ..well…it makes me have more belief in the “simulation theory”. So I am sorry for that, Atlas !

 

[Lane]

Hello. I have joined bc Ive developed a chronic illness and am fairly suddenly bed bound/homebound and constantly uncomfortable. And there’s no end in sight.
this may be one of the places I can say, “I pray for cancer”, so there’s be an end . I am looking to hear from people considering ‘ things ‘ through such a lens.
One blessing I have, is my sleeping pill WORKS! BUT, I have extremely vivid dreams and ..well…it makes me have more belief in the “simulation theory”. So I am sorry for that, Atlas !

Welcome to the forum @Goodbyekitry. Sorry for the circumstances that brought you here though. I hope that SF can bring you some peace of mind around like minded folks.

 

[KM76710]

Hello. I have joined bc Ive developed a chronic illness and am fairly suddenly bed bound/homebound and constantly uncomfortable. And there’s no end in sight.
this may be one of the places I can say, “I pray for cancer”, so there’s be an end . I am looking to hear from people considering ‘ things ‘ through such a lens.
One blessing I have, is my sleeping pill WORKS! BUT, I have extremely vivid dreams and ..well…it makes me have more belief in the “simulation theory”. So I am sorry for that, Atlas !

I am glad that you joined, you are welcome here. Sad at the problems you are having but this is a spot where you can post as you want and need. I hope you continue to do that.