• IMPORTANT ANNOUNCEMENT: Please read THIS THREAD about a rebrand for SF.

Sinus Issue

anona123

Well-Known Member
#1
I have an odd issue in that it was caused by a surgeon. I was seeking help with breathing issues and the dr removed far too much of my sinuses. My nose is too open now. Hard to explain but sinuses have been very dry and raw this winter. It often makes me physically the pain is constant. I don't know how to battle this and mental issues. Just tired of always fighting.
 

Ash600

Of dust and shadows
SF Creative
SF Supporter
#2
That must be awfully distressing to say the least. From what I gather, unfortunately surgical procedures such as what you've had can in a few cases cause this. If you havn't done so already, perhaps go for a medical consulatation to see if this can be corrected? Sometimes a deviated septum or enlarged turbinates can result from nasal surgery. If so then a routine procedure is normally sufficient to correct this.

At the very least, they may be able to offer tailored made advice to manage the excessive nasal dryness such as using a humidifier in your room so as to help hydrate your nasal passages.

Hope someone will be able to help you with this.
 

Enjoythesilence

Well-Known Member
#3
I'm sorry you're going thru this, on top of mental issues. I imagine it can feel overwhelming. A dentist poked a hole in my sinus when removing a tooth and I had to have oral surgery. Medical professionals don't always get things right. Sending you peaceful and healing thoughts.
 

anona123

Well-Known Member
#4
That must be awfully distressing to say the least. From what I gather, unfortunately surgical procedures such as what you've had can in a few cases cause this. If you havn't done so already, perhaps go for a medical consulatation to see if this can be corrected? Sometimes a deviated septum or enlarged turbinates can result from nasal surgery. If so then a routine procedure is normally sufficient to correct this.

At the very least, they may be able to offer tailored made advice to manage the excessive nasal dryness such as using a humidifier in your room so as to help hydrate your nasal passages.

Hope someone will be able to help you with this.
I'm surprised to hear you reference turbinates, most people don't know about them. That's my main issue though, mine were nearly completely removed. It's why I'm so dry and raw all the time. He caused other issues too but that's the biggest. It's very difficult to describe but every breath is a struggle.
I appreciate the responses. Unfortunately they cannot be replaced. I have an ent appointment Monday morning but so far no one can help.
 

Ash600

Of dust and shadows
SF Creative
SF Supporter
#5
I'm just throwing this out there, but one possibility is that this could be Empty Nose Syndrome (ENS) due to turbinate removal. As well as dryness, is their crusting, dyspnea and paradoxical nasal obstruction? It's kind of rare but it does appear to occur. Actually just realised, you did mention the rawness and breathing difficulties in your reply. Hopefully with any luck, your appointment on Monday may help to pinpoint the cause and so engage with appropriate measures to manage this.

Trying to pinpoint the exact cause of an issue can be a bit tricky at times as it's not always a clear cut case. And of course there are occasions where the treating medic may not be looking in the right direction. Lol, this reminds me of a case years ago where one of my cousins was experiencing nasal issues. She was mentioning that for months her doctor was treating her but to no avail with nasal steroids and antihistamines. I told her to she's missing a trick as she works in a hospital. Advised her to show her nose to one of the ENT guys and get checked for polyps. Hit the jackpot as that's what she had and so got treated accordingly.

But anyways, best of luck with Monday's appointment. Let us know how you get on?
 

anona123

Well-Known Member
#6
You know your stuff. It is ENS. I was diagnosed anout 15 years ago. Two surgeries to help things. For a while it was ok. But now it's bad again and the specialist i saw no longer treats ens. It drives people crazy and patients are difficult to deal with. There's more to my story but that's the essence. Very rare condition, few options, and doctors moving away from it. I don't blame them actually, we do go mad. It's why I initially attempted suicide. It completely changed my life and I've never recovered. It led to severe insomnia and I think the personality disorders i developed.
I appreciate the responses. I hope for something positive Monday but fear I'm out of options.
 

Ash600

Of dust and shadows
SF Creative
SF Supporter
#7
From what I've seen and heard ENS appears to be one of several conditions where doctors may be vaguely aware of but not really focused enough on dealing with it. Perhaps due to the rarity of the condition and as an aside, the same can be said with regards to the medical industry with regards to this. In some respects, this resembles the nasal equivalent of tinnitus which itself can drive people up the wall.
From what I gather, the disruption of sensors from turbinate excision can lead to a disparity in the sensing of pressure and temperature within the nasal cavities. Sensation of which can be further worsened by the increased volume of air within the cavities.

You know your stuff.
Well, I've worked in healthcare for over 30 yrs lol. Though it sounds f##king obvious I've always maintained trying to find a doctor who will listen to you rather than the sound of their own voice.
 
#8
Maybe this won't help anyone else except me but worth a try in case it resonates with anyone who doesn't know exactly what their issue is, i. e. their "specialist" ENT doctor or whoever is telling them "there is nothing wrong with you it's in your mind". I was suicidal for a few years and I was adamant that it was being caused by fluid and infection round one side of my face - ear, nose throat etc. I eventually solved my issue 100% by accident. As unbelievable as it sounds my life saver was to get a tooth removed. Before removing the tooth my new dentist said I have an infection caused by a bad tooth. She said "where you can feel that lump with your tongue that's an infection full of puss etc". I couldn't feel that much with my tongue and there was no actual pain but I knew I'd had this lump for years. Of course it never occurred to me this could be literally poisoning me and causing a million issues. I said to the dentist "I've had that lump for years". She said "you have had an infection for years then". I explained every other symptom I felt. She was finishing my sentences for me saying "and the ENT told you there was nothing wrong" etc etc. She had a similar patient who had been for a brain scan convinced they had a brain tumour but it wasn't it was the same issue I had which doctors had never considered. Little jag, tooth out, all problems solved. Felt huge difference from day 1. Didn't take long to get all my energy back and for every symptom of my suicidal depression to clear up.
 

Please Donate to Help Keep SF Running

Total amount
$0.00
Goal
$255.00
Top