chronic pain

[Prettywoman]

Hi I am new and been in chronic pain for 10 years....i have become housebound for the last 3 and despite my best efforts am in bed with my heating pads and ice most of the day as the pain is literally head to toe and ever changing...i cant sleep for the burning throbbing stabbing pain ripping through my whole body and it means my mental health has been colapsing more and more.

Not least my husband lost it with me a few years ago and i am very sensitive person and seemed to blame me for being sick and how it has affected his life and put me through a terrible trauma where i thought he was going to leave me again when i was at my most vulnerable..i understand it does affect him but at that point i was still pretty active and did so much as i had better days and wasnt even depressed ....and he had already cheated on me and dumped me a decade before that....all the emotional hurt i know has exacerbated this disease and maybe even was the trigger to cause it.

I used to be a highly successful career girl brought up a family and was very capable and active.

Now i am a shell of that person and have panic attacks day and night despite medication and am suffering so much as i cant bear the physical pain and feeling such a failure as a person for all i cant do for and with my husband and family....pain at this level means loss of everything that gave my life purpose and joy and me my sense of self.

My laptop is my only link to the world....all my friends have gradually disappeared because i cant join in.

Anyone else on here struggling with Fibromyalgia.ME or CFS or another very painful illness? Sadly mine has progressed to be at the severest end of the spectrum...some people do stay active and even manage towork and i have fought so hard but i literally have pain in every muscle joint tendon including daily migraines and face pain.

Thanks for listening

 

[may71]

Hello and welcome!

Sorry to hear that you are going through this

I recommend acupuncture a lot for many different conditions, but especially for chronic pain

I think there may also be a book called "Curing" or "Treating Fibromyalgia with Chinese Medicine". In any case, there's a series of similar titles co-authored by Bob Flaws. This may only be available as an ebook now, or available from a library through inter-library loan.

 

[SinisterKid]

Hi and welcome to SF. Having experienced some severe pain myself recently, I can empathise. I thought the mental anguish of depression was bad, physical pain, which is unrelenting is just blue murder. I wish I could say, do this, try that, but right now, my own pain is unresolved and I know very little about the causes of physical pain as I have never suffered it like I have recently.

So what kind of pain relief do you use? I use ice packs, so understand their benefit. But you need more than that to cope with what you have.

 

[birdie5]

Raises hand. I hear you. I have fibromyalgia, with hypermobility and a few other things. Yes the pain just brings you down physically and emotionally. Hang in there. Gosh I know its so hard. This place has kept me sane.f.

 

[Struggling along]

Apologies for the late reply, I can sympathise with you about chronic pain. We're all here whenever you need to talk to anyone, or just give me a shout. There's a section on here, Life Changing Illnesses, I think, where other people who have the same conditions as you have posted, maybe that would be some help too?

Take care and sending you (((hugs)))

 

[zige]

this may help

i have the cd for this if ne body would like them

 

[zige]

 

[Walker]

Hi there, I've got Ehlers Danlos syndrome so count me in with the chronic pain folks too. I feel for you and understand what a toll it takes on you and the rest of the family. My wife is also in chronic pain management and it makes juggling both of us at once a real trick. It's understandable to feel just completely screwed up like there are no resources available to you. I get it. I hope you find some people to chat with here, some people you click with. Hang in there and keep posting.

 

[shattered dreams]

Anyone else on here struggling with Fibromyalgia.ME or CFS or another very painful illness? Sadly mine has progressed to be at the severest end of the spectrum...some people do stay active and even manage towork and i have fought so hard but i literally have pain in every muscle joint tendon including daily migraines and face pain.

Thanks for listening

Hi prettywoman,


I feel every ounce of your pain, 12 yrs ago I was stopped at a red light and was rear ended by a driver that apparently had a seizure and never even slowed down, I've had 3 low back surgeries and 2 heart attacks that followed, I have been on high doses of opioid pain meds for years now. I can walk (with a cane) but only very short distances (my legs go numb) and severe pain sets in.

I was in severe pain 24/7 even with the pain meds (they only take the edge off) after my 3rd surgery, I can actually lay down and be comfy, but the minute i sit or stand/try to walk I only have about 10-15 minutes before my legs are totally numb and the pain intense.

most of my days and nights are spent just laying in bed, my lap top as your puter, is really my only thing that keeps me connected to the world. living like this gives you no quality of life, I just feel like i'm waiting to die as i lay here day after day. fortunately my pain is only my low back/legs, i can't imagine adding it to each and every joint in my body.

but just the fact, that i'm pretty much bed ridden is very depressing, yea I can limp to my truck and go for a drive, but with every bump i feel hurts more than the last one and i pay for it later. there's been days where i'd get home and have to be carried into the house because my legs went numb and my pain was unbearable.

I don't want to hijack your thread, I just wanted to raise my hand to your question about anyone having this much debilitating pain.

I was making real good money as a flatbed tow truck operator, i haven't been able to work since April / 2005

This has a lot to do with my depression, which has brought on feelings of loneliness, isolation, emptiness, anxiety and intense feelings to self harm.
I'm glad i was able to share that with you

 

[zige]

hi there thanks for sharing

this is what like you do for me you have nothing to lose . then i will tell you what happen to me. so do this every day