• Please read the thread in Forum News and Announcements pertaining to race related discussion on SF - thank you :)

Epilepsy

iwihbn

Don't the sun look angry at me?
#1
This is more of a question post:
Has anyone here had seizures in the past that they got over? I'm a healthy 19 year old man, and seizure symptoms developed when I was 17. I've got a vision issue (squint), and I can't even write, only type. I tend to have seizures after drinking (majorly cut back, once a month at most), but can have them for any reason. It starts as a 'normal' dissociative episode, and progresses into my hands shaking, then moving in a large fashion. My most recent seizure was 34 of a year ago, but thats more due to me being super careful about straight lines, such as chess, excel or calligraphy?
The doctors have done an EEG and an MRI, but found nothing abnormal. They wanted me to come back, sleep deprived and try to give myself a seizure, which I dipped from pretty quick. Medication they gave me made me turn into a robot, have dissociative episodes and increased my BPD symptoms.
For anyone who developed seizures later on in life, did they go away? I've started getting better sleep (9 hours a night), but I'm at my wits end. COVID means I cannot go back for now.
What can I do with this?
 
#2
Sorry that you haven't found effective treatment yet.
What can I do with this?
Here's a couple links about acupuncture. One is an article from the National Institutes of Health, US National Library of Medicine; the other is on the web site of the Epilepsy Foundation.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3292226/

https://www.epilepsy.com/connect/fo...ies/acupuncture-has-helped-reduce-my-seizures

I can say more about the subject if you are interested. Many but not all acupuncture clinics are open, at least in some states.

I hope you can find something that helps.
 

iwihbn

Don't the sun look angry at me?
#3
Sorry that you haven't found effective treatment yet.

Here's a couple links about acupuncture. One is an article from the National Institutes of Health, US National Library of Medicine; the other is on the web site of the Epilepsy Foundation.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3292226/

https://www.epilepsy.com/connect/fo...ies/acupuncture-has-helped-reduce-my-seizures

I can say more about the subject if you are interested. Many but not all acupuncture clinics are open, at least in some states.

I hope you can find something that helps.
Does this work? I always expected acupuncture to be a psuedoscience but I may have been wrong
 
#4
I always expected acupuncture to be a psuedoscience but I may have been wrong
There's a lot of evidence that acupuncture works for a lot of different conditions.

Particularly if conventional medicine doesn't have any treatments that you can tolerate, then it sounds like it's worth a try. The proof is in the pudding. If you stop having seizures, then it works. If you don't, then you should probably give it up.

If you want to try this, I can give you info about finding a clinic, and try to answer an questions that you have about getting treatment.

-----------
Chinese Medicine and Acupuncture is the world’s second largest medical system, serving more than 1.5 billion people worldwide. It is fully incorporated into the public health systems of China and Japan
https://www.uwc.ac.za/Faculties/CHS/SoNM/Pages/Chinese-Medicine-and-Acupuncture.aspx
The World Health Organization (WHO) has endorsed Traditional Chinese Medicine. The 11th revision of the WHO's International Statistical Classification of Diseases and Related Health Problems (ICD) will include Traditional Chinese Medicine (TCM) for the first time. The ICD-11 will come into effect on January 1, 2022.
https://www.integrativepractitioner...est-icd-includes-traditional-chinese-medicine

The WHO published an official report in 2003 listing 31 symptoms, conditions and diseases that have been shown in controlled trials to be treated effectively by acupuncture.
https://reliefacupuncturepa.com/world-health-organization-approved-list/

The US Centers for Medicare and Medicaid Services announced in January 2020 that acupuncture would be covered nationally by Medicare for the treatment of chronic low back pain.
https://www.cms.gov/newsroom/press-...-chronic-low-back-pain-medicare-beneficiaries

A study published in the British Medical Journal found no serious adverse events occured as a result of treatment with acupuncture within the study's sample. It estimated serious adverse events to occur less than once for every 10,000 treatments, making it much safer than many conventional medical treatments.
https://www.bmj.com/content/323/7311/486
 
#5
Sorry, you have to deal with seizures, I had a grand mal seizure at 14yrs old I got put on dilatin for it. Years of blood draws and tests I grew out of it at 22 and now at 44 I am still seizure-free for now, my older sister though had a seizure when she was younger and she grew out of them but they came back when she hit her 40's so I sit here wondering when will mine come back. I hope you can get better and figure ways to deal with it.
 

iwihbn

Don't the sun look angry at me?
#6
Sorry, you have to deal with seizures, I had a grand mal seizure at 14yrs old I got put on dilatin for it. Years of blood draws and tests I grew out of it at 22 and now at 44 I am still seizure-free for now, my older sister though had a seizure when she was younger and she grew out of them but they came back when she hit her 40's so I sit here wondering when will mine come back. I hope you can get better and figure ways to deal with it.
Its good to know that they can stop! Hopefully soon I'll be able to drive again :D
 

Please Donate to Help Keep SF Running

Total amount
$70.00
Goal
$255.00
Top