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Daily headaches that left me bedridden most of the time...8 years

#1
After the birth of my twins, I had chronic Daily headaches. They were all day everyday. I had one long headache for 7 years. I saw many doctors that misdiagnosed me. The headaches, nausea, neck pain, confusion at times left me unfuctional. After 7 years I was diagnosed with a Cerebral spinal fluid leak, that ended up being a result of an epidural. I ended up having to travel to one of the 3 major specialists in the country to get help. They did blood patches and had great success the first time, until I fell. Went back again and had go results until two months out when I ended up stopping a box from falling on one of my kids.
I went into debt trying to get help from Duke University, where one of the specialists is. There is no way I can get back there. I am going to try to find someone else near that can help since I know what they did and how they did it differently. It’s not a guarantee. I vomit all the time, not only bc of headaches, but also from stomach issues. I have been vomiting so long that my teeth are decaying. They ended up having to pull for teeth, and have so much more work to do, that I would be able to afford. I was in pain management, but got out myself and self withdrew of my pain meds. I don’t want to go back on them, but pain is getting worse. After going this so long already, had to many doctors tell me I wasn’t in enough pain to have this, or that they wrote me off bc I was to difficult of a case. I can’t see me going on this way for to much longer. I am hoping I can hold on for a year or two, but I don’t see to much past that.
I am married, I have 3 kids that I need help to take care of. My husband is getting tired of me being sick all the time, especially bc we live with my mom, and he has to hear such hateful things from her. My doctor asked me today if I was sucidal and I told her not yet, but I’m not sure in a year. I just can’t stay in the amount of pain I am. I feel horrible for even thinking it with kids, but I don’t think I will have the will to fight for to much longer. My kids are the only reason I have made it this far.
 
#2
Sorry to hear that you are going through this Kimberly

That's a terrible amount of pain to have to live with for so long.

I often like to offer practical suggestions, but that's not always the thing a person wants or needs most. Do you want to say what SF could do that would help the most?
 
#4
Acupuncture is very good at treating pain, so I would encourage you to try that if you haven't already. It may also be able to help with treating some other symptoms.

If there is an acupuncture school near you, there's a good chance that they have an associated teaching clinic. Teaching clinics often offer quality care at low prices, or even for free.

If you can't find a teaching clinic, you might want to try www.POCAcoop.com. They offer community acupuncture, usually for $20 or so per session.

There's also private clinics, but these are usually a lot more expensive.

So maybe a promising new treatment might help you get your will to fight back? I hope so! :)
 

Walker

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#5
Are they sure your headaches are from CFL?
 

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