I’ve had CFS/ME ~30 years, which is progressive neurological illness and can cause one to be slowed or bedridden. It’s relatively obscure, about 10 million cases worldwide. Last month I got 2 new diagnoses which may or not be related but are also neurological. One is peripheral neuropathy in...
I’m 18 years old. Eighteen. Seems pretty young. Yet amazingly, I’m already halfway through my life expectancy. Living with vascular EDS and severe lupus is awful. I’m not going to lie: it is terrible. I’m in the hospital more often than not, I’m in constant pain. Not to mention my grades are...
After the birth of my twins, I had chronic Daily headaches. They were all day everyday. I had one long headache for 7 years. I saw many doctors that misdiagnosed me. The headaches, nausea, neck pain, confusion at times left me unfuctional. After 7 years I was diagnosed with a Cerebral...
I found this video on Youtube of a guy who talks about his experience with Fibromyalgia and it really just does all the talking for me.. I relate a lot to what he says. I am frustrated with everything. And I wish I could do so much more. I'm tired of the stigma. I'm tired of hiding my pain. Some...
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